Sunday, March 28, 2010

Joke

There are numerous conditions related to autism-- this is why it's called the "autism spectrum." Some disorders are severe and others are mild. Very rarely does someone simply have autism. There is usually a crossover with autism and other condition(s). This is called "co-morbidity."

Our sweet little Aspie also struggles with ADHD. And mild sensory integration dysfunction. And other things, too. One of these is auditory processing. This means that it takes longer for spoken language to go from his ears to his brain. We have to repeat what we say to him. A lot. And sometimes the language gets scrambled in the process.

He has come up with his own coping mechanism for this. And we, his parents, think it's cute. No, not just cute. Absolutely adorable. His teachers find it endearing as well. As he processes the statement or request he's just heard, he'll whisper it back to himself. For example:

"Mom, where's daddy?" he'll ask.

"Daddy's at work. He'll be home soon." I'll say.

A pause. Then comes the whisper: "Daddy's at work." He'll hold still for a moment longer (quite a feat!) And then he'll proceed with what he was doing (usually, jumping off the furniture,) satisfied that he understands what I just said. This type of exchange always makes me giggle.

Spring has come, somewhat grudgingly, to our area. Our little guy was outside with daddy, working in the garden. He noticed a multitude of ants crawling across the hose reel and pointed them out to his father, who asked:

"Do you see ants? Do we have ANTS in our PANTS that make us DANCE?" joked daddy.

Our little guy froze. The wheels turned in his head. Then came his whisper:

"Ants... pants... dance................ JOKE." He processed it quite well.

And with the tiniest of giggles, he dug into the garden again.


Monday, March 15, 2010

Leprechauns and lectures

We have a "tot lot" at the head of our street. For those of you who are unfamiliar with the term, it's a mini-playground, usually with just one structure and meant for small kids. The ground is covered with wood chips to cushion the inevitable fall. It's a great place for our kids to let off steam, except... not just the little kids use it. The big kids do, too, namely teenagers. Except they use it as an ashtray.

You can imagine how delightful that is: teaching your child to be careful as they climb, slide, and dodge cigarette butts. I overheard one of my neighbors say, "It would be nice if we could actually talk to the people who leave the cigarettes here. They're probably teenagers. You think it would make a difference?" We all laughed at the absurdity.

Today I was parked near the tot lot as I waited for my little guy with Asperger's syndrome to arrive on the school bus. A car pulled up next to me and three large teenage boys got out. They sauntered over to the lot. In my rearview mirror, I watched them light up. I sighed. Wouldn't it be funny if I confronted them, I thought. What would they do? Laugh at me and mock me? Roll their eyes? What exactly would I say, and how would I say it? I pondered. Then the bus arrived.

As my son ran down the bus stairs, I decided. I grabbed his hand and marched over to the tot lot. As we approached, I watched the teens' body language. They stiffened as we drew closer. Finally, realizing that we were there to talk to them, they turned to face me. I thought I might appeal to their adult side. I hoped.

"Hey guys, the parents who bring their small children here think it's pretty gross that you leave your butts on the ground."

They were startled. I suppose they expected a harangue about their health. I continued.

"When you're done here, could you please throw your cigarettes in the trash?" Of course, I didn't think about the fire hazard, but it's been raining for days here.

They were speechless for a moment. They looked at each other and, likely realizing that my request was entirely reasonable, they nodded. "Yeah, okay."

No derision. In fact, they seemed to hang their heads. That threw me, and I could do nothing but stand there, lost for what to do next.

Thank goodness for my little Aspie, who can't read facial expressions or voice intonation, or in this case, be aware of an awkward situation. He yelped,

"Hey guys! Wanna know how to catch a leprechaun? You get a box with a trap door..."

He then proceeded to lecture them about trapping those elusive little green men. He was quite entertaining. We all laughed as we walked away.

I'm pretty sure that's not the lecture they were expecting.

Wednesday, February 17, 2010

Count on it

My older two sons are a tough bunch with their special needs. So, having a third son whose challenges are mild has been a nice break. We were at his four year checkup while the pediatrician quizzed me on his milestones.

"Stands on one foot? Jumps up and down? Climbs stairs without using the banister?"

Check, check, check. He was on target and I was relieved. We went through a long list of questions. Then,

"Knows what it means to count, beyond rote recitation?"

The fact is, he's pretty good at counting. And he knows his alphabet, and can read some short words. Problem is, I am not used to "typical," so I don't know if he's ahead of the game. In our family, he is. I'm just.. you guessed it... relieved.

We got to the end of the checkup and she announced that he would need five shots. I cringed. I am not in the "no immunizations" camp, for that is too extreme for me. But my mothering instinct tells me that there is some weight to a few of the claims that the extremists have made. I am near the middle, in the "space them out over time" camp. The doctor was very irritated at me for holding my ground, but I held her to just two shots at this visit. She warned,

"You'll have to pay another co-pay at the nurse visit for his next shots."

"I know." I can count. Bring it on, lady! Like additional co-pays would dissuade me when we have autism in our family history. She stopped short of rolling her eyes but respected my position as the mother.

The nurse came in with the syringes and I performed the oh-so-horrible job of pinning my son's arms to his sides as I allowed her to stick him twice. Nine years of this and it still pains me. He cried more than usual so I held and rocked him for a while.

Usually I reward my kids with candy from the grocery check-out line. Having an immunization is the only time that they get such a treat. Today, though, I was hungry, too, so I whispered,

"Would you like to go get a doughnut?"

His crying subsided, though the sniffles remained. His head was buried in my chest and he nodded. Sniffle, snort. Whimper. He paused, then asked meekly,

"Can I have two doughnuts?"

Yes, doctor, he can count.

Thursday, February 4, 2010

Watch your language

Freshman year in high school was as painful for me as it is for most people on earth. Add a big growth spurt on top of everything else, and, wow. Just wow. I wonder how so many billions of people make it through pubescence alive.

One bright spot was starting Spanish class. I discovered that I really liked learning another language. Seeing a person's face light up when I attempted their native tongue thrilled me. I even learned more about my own language (gerunds and dipthongs anyone?)

Other languages followed. I taught myself several hundred ASL signs. When I went on to college, I continued studying Spanish and began formal ASL classes. I bought myself a learn-to-speak French software program (but discovered I'd had enough of Romance languages.) While overseas, I studied a bit of modern Hebrew. Upon arrival back in the States, I took three semesters of Arabic. Hindsight is 20/20, of course, but why didn't I major in linguistics???

I married a man who is a born linguist. He speaks Portuguese and Arabic (but would claim that he is rusty at both.) What would naturally follow, but children who are linguistically gifted?

Our firstborn was diagnosed with a speech delay. Then our second-born was diagnosed with many things, the least of which was a speech delay. I've kept an eagle eye (ear?) on our third. It can't be called paranoia when there's a rock-solid reason to worry, right?

But, hey, who better to raise children with language problems than parents who have a knack for language, right? Turns out, the sign language I studied came in pretty handy with those kiddos. With hearing children, the use of sign flows pretty smoothly into spoken language.

Now I play language games with my third son. He gets me all to himself during the day. We were in the car and I was working on beginning consonant sounds. I asked,

"What letter makes the 's' sound? Like 's', 's', 'snow'?"

Silence.

"That's 'esssss.'" I prompted.

We worked on other words we saw along the road, then I tried to mix it up.

"What letter makes the 'm', 'm', 'muh' sound, like 'milk'?"

He was quiet for a moment, then he called out,

"That starts with the letter 'cow'!"

He was so proud of himself.

Saturday, January 16, 2010

Scarry question

One of our kids' favorite books to flip through and spend time with is Richard Scarry's What Do People Do All Day? The first time I saw the title it really tickled me. After all, a child's world can be pretty small. Who knows what they're thinking in those little heads? When adults disappear for the day, what do these kids think they're doing?

The book is chock-full of people (or rather, furry animals) involved in every type of occupation. Most of the jobs can be identified by the clothing worn by the workers. And in fine Scarry form, these creatures are often caught up in some type of mishap as well.

I am a jeans-and-t-shirt kind of gal, mostly due to the messy hazards that come with raising boys. In fact, I classify my clothing by whether I will be in contact with my kids or not. So there's the "will survive tackling, ink stains, and repeated washings" and there's the "stay far away so that I can look presentable in front of professional people" clothes.

This second group consists of what I would wear teaching and tutoring. And lately it has also consisted of what I would wear while giving speeches in front of our county's School Board. I've stood in front of them numerous times now, trying to influence the Board to make correct decisions concerning local education.

Now, I've tried to explain to my kids what I do as an SAT/ACT teacher and tutor. But the whole concept of college test prep is outside of their world. At least they know what a teacher is. However, when it came to explaining why I was giving speeches in front of the School Board (not to mention what exactly is a School Board,) it was tough. Conveniently, the local cable channel would broadcast the meeting, so my husband would record the portion with my speech.

Our kids were thrilled and a little confused about seeing mom on t.v. Our oldest understood but I wondered what our middle child with Asperger's thought about the whole thing. Did he think I went far away? Did he think I was teaching? Who did he think I was talking to?

A few nights ago, I was getting into the car in order to drive to a tutoring student's house. My little Aspie flew across the front yard and planted himself inside my open car door, preventing me from closing it.

"Mom! Mom, Mom. Where are you going?"

"I'm off to tutor a student at his house."

He gave me a brief hug and then pulled back, carefully evaluating my outfit. Then, with a very serious face, he asked,

"Will we see you on t.v.?"

I guess I still have some explaining to do.

Friday, December 4, 2009

Life coach

As the mother of all boys, I cherish the moments I get to spend with girls. Mind you, I am also bugged by little girls. They tend to drive me crazy. I do not have any sisters, so the whole female dynamic is rather mysterious to me. When I step outside and watch the neighborhood girls, I am completely flabbergasted by how catty and downright cruel they can be. So I'll keep my boys.

I'm sure those girls' moms feel the same way about my living, breathing, destructive ping-pong balls I have for children. To each his (and her!) own.

So being a basketball coach means that I get the best of both worlds. My first year, I had one girl on my team who didn't make it through the season. The second year, I had two, and feisty ones at that. It was great.

This year, I have three. Bonus!

I tend to spend a little more energy coaching and refereeing girls. I adhere to the theory that in order to improve the world, we need to improve the lives of women. And what better time to start than when they are little women! That one high five, that one word of encouragement, could start them on the path of self-worth, belief in self, and leadership.

Of course, that doesn't mean I don't coach the boys, and just as hard. But having a woman bust their butt down the court is good for the world, too.

So before our first game of this season I was jazzing my players up. I was pumped and ready to yell for the next hour. I turned to one of the girls and asked, "Are you ready?" It was going to be her first basketball game, ever. And her face was green. Literally. She looked as though she would vomit at any moment. She shook her head.

"I'm so nervous!"

I smiled and assured her, "You're going to be great! I know you can do it."

She did not look assured as she turned to watch the game. I patted her shoulder and hopped down off the bleachers.

Partway through the game, I turned to her and gave her an assignment. She would be point guard. (For those of you unfamiliar, this means she would be dribbling the ball down the court and initiating play with her team.) After I reviewed what her job would be, her eyes grew wide and she shook her head. Again, I reassured her. Be tough, I said.

The referee handed her the ball and she worked her way down the court. She was unsure at first but gained some confidence throughout the quarter. I hoped that I hadn't scarred her by giving her such a responsibility at her first game. The buzzer sounded, and we gathered by the bench.

I was short a couple of players so I had to choose someone to stay in the game. I scanned their faces, trying to make my decision. My gaze settled on this neophyte, her hair sweaty and matted to her bright red cheeks. Her eyes pleaded with me as she huffed,

"Please, please can I stay in? I want to dribble!"

How could I say no? It was moments like these, after all, that define the reason why I coach in the first place.

Sunday, November 8, 2009

One size fits tall

At the school bus stop one morning, we heard sirens roaring down a nearby cross street. I turned to the other parents and declared, "They found me!" I pretended to turn and run, then I looked down at my son. He didn't seem too amused with the idea that his mom might be on the lam. So I laughed and rubbed his shoulder, hoping he would catch the joke. His smile looked a little shaky. Just what did he think I would be on the run for, anyway?

Recently, I was informed that my one clothing store was closing down. This was the only place where I could shop for and actually try on clothes that were meant to fit me. In other stores, it's just a fluke if I find something that fits properly. A sign of the times? Apparently tall people don't need to wear clothing when the economy is cruddy.

So now it's back to strictly shopping online. Which means that instead of shopping like a regular person, I get to deal with shipping and handling, returning clothing that isn't sized correctly, waiting for the new one to come back, and finding out that even that size doesn't work. Add on top of that the finicky leanings of female style, and I am NEVER going to find new clothes again.

So when a package with two blouses arrived for me recently, I was already feeling churly. Just because the description said "tall" didn't mean it was actually going to be for a truly tall woman...

My oldest son caught sight of the package and said he hoped it was for him. I explained that it was "just clothes" and it wouldn't be very exciting. He became agitated.

"How come I never get any packages?" he whined.

"That's not true!" I said. "What about Christmas time or your birthday, when you get presents from your relatives?"

"That's not what I mean. Other times, too."

In hindsight, I'm sure my frustration with the closing of Tall Girl and the need for online shopping seeped through in my tone of voice. But as I explained,

"Mommy can't buy clothes in stores like regular people. I have to order the clothes on the computer and then have them mailed to our house," he reacted in a bizarre manner.

His bottom lip stuck out and he burst into tears. That snapped me out of my self-pitying mode right quick. He quavered,

"Is there a law?"

I froze for a moment, completely lost. Then I realized that my choice of words: mommy can't... have to order... made him think that it was illegal for me to shop in stores! I threw my arms around him and we had a good laugh. I guess we still need to work on the idea that it's okay-- and legal-- to be taller than other people.